Over the past 3 months I’ve only had a couple of days of breakthrough migraines.
Until 18 days ago.
Fucking “breakthrough pain”…migraine pain. The mother-fucker…it hit me nearly 20 days ago. The fucking beast is back, despite my hopes and prayers that I’m healed. I have too remain hopeful. Although not feeling so right now. This migraine, migraine, like most I’ve had, included a trip to the emergency room. I’ve been on steroids, and steroid injections, IV fluids, narcotics, anti nausea medicine/therapies. Since my ER visit I’ve drank nearly 400 ounces of migraine specific, chamomile and ginger tea. I’ve been using the Celafy device religiously and now on my second dose of Prednisone. Yes, this one is really bad and I’m up in arms as to what to do about it…
When seeking treatment at the ER, back in the day, they use to give me a heavy narcotic to STOP the migraine pain in its’ tracks. I would leave feeling fine- no more headache. Not anymore. Times have changed. Even though the local ER staff know me and what helps me they only give me steroids and Tylenol.
I’m sorry, but if I leave the emergency room with the headache still remaining, I know there’s nothing I can do at home to help. If I leave ER with a pain level of 6- I know I am doomed. I cycle between hope and faith and discomfort and tears.
Migraines interfere in my life for weeks at a time and months a year. I do so well, managing pain and symptoms, then it will hit me out of no where…what the hell, is this madness? One day one medicine will help and the very next day, it won’t. I’ve been in bed, in my dark room with my own air conditioner, for nearly half the month. Ice, cold showers, aromatherapy, chill music, stretches, breathing exercises and of coarse eyelid kisses from my man, all help me creep along the way.
I know a lot of people who suffer from migraines find they eventually just go away. A lot of women sufferers find that their attacks are associated with their period and that the migraines stop for them after menopause. Not me.
So when will this miraculously go away? (haha! Let’s laugh about that)
After 12 years of dealing with this totally life changing, debilitating disease, and thus 12 years of spending a majority of my time on the sofa, I can’t imagine that my migraines will just miraculously go away. They are such a big part of me, a huge part of my life. I feel like I have an extra limb that’s attached to my body that Is awkward and unusable. I have to make adjustments to my care, daily. It is a full time commitment to keep me out of pain.
To think geez, what would my life actually look like without migraines- Total freedom of pain?… I think I’ve earned that. We all deserve peace.
I pay my respect to all migraine sufferers. We are a strong group of people. I’m pretty bad but I know there are thousands of people that have my type of migraines. 1% of all chronic migraines suffered have the type I do.
I lift all of us up.
This pandemic has been good for my well-being, and maybe for you too. Or you could be feeling worse due to all the changes we’ve had to make, those being our natural comforts.
Much of my work is done online. So I can still develop my business while I have this time so when we do reopen the economy I’ll be prepared to meet the demand of self healing. Being creative stimulates me and working on things that I enjoy is all more of a plus.
I am on social security disability and get a check every month. (Thank you God). This is what I’m living on. It’s no where near enough but I’m grateful for all the assistance I’m given. Having my disability check and Medicare with supplement coverage… I feel very secure that my needs will be met, unless my health declines as I fossilize or circumstances change (Who knows, I may win the lottery!)
I’m spending this time on my needs and wants! Investing in my well-being. I’m much less stressed and I’m starting a new adventure. Life after Quarantine. I’m doing things I enjoy that I’ve never had time for. And during this time, focusing on things that make me happy. I’m promising myself that my new hobbies will not go away as the world moves forward and we “open up”.
My neighbors and I have started a huge garden full of veggies and fruits that will hopefully grow and grow enough food for 7 people. My neighbors are a family 5 than there’s us, a family of two. This garden is about 500 square feet and it’s packed. In addition to the garden itself we have planters full of tomatoes and lots of flowers. I’m in love with this garden!! We spend have spent countless hours on it. To sow these baby seeds, inside, then to anxiously watch them flower until they are ready to go into the ground. I can tell you, at this moment, the garden is ALIVE. It’s so satisfying to see our hard labors come to life. We’ve been blessed with growth, and l hope that continues. It’s something that I love having in my life.
Here’s something exciting which I couldn’t wait to share is that I’m soon starting physical therapy for my migraines. How cool is that?! And something I would have never thought of. None of my doctors have suggested this and why not? I’m going to try it. My posture is far from good. Yoga this last year has strengthen me and has lengthened my spine. (So yes I’m taller now!) My hips are unbalanced, one shoulder is higher than the other and I carry stress in my neck and back…. this could be causing or at least attributing to the migraine pain. So shit! I’m going to go for it! Why would that not help?
Have any of you had physical therapy for your migraine pain? And if so, did it make a difference?
I’ve been on the Ajovy injection preventative treatment since January and it has worked WELL! Well, not so good these past 3 weeks. It works with my other medication to help stop the migraines from developing. But I’m all too disappointed that this current migraine has broken through. I’m not giving up on Ajovy.
I tried the Emgality injections last year and it had no affect on me.
I also just purchased a Neck Sling which uses traction to eliminate neck pain and stretch the muscles. It is also suppose to be good for posture and relieves tension headaches. I bought mine on Amazon. I’ll let you know how I like it.
But I kept the battle going by having continued hope and having a positive attitude to try something else and thus my doctor recommended Ajovy. These past few years has brought much hope for migraine sufferers. We have more choices than ever before.
Now is the time. KNOW YOURSELF AND YOUR DISEASE.
Are you thriving or surviving?
God bless all pain sufferers and for the support you give me by reading my posts.
Chao for now.
Ps- the last time I posted I had action steps to do where you determine your top 5 most important priorities?
Now-look at your upcoming schedule then discover what actions in your future 2-week schedule are not within those priorities. Delete at least one scheduled event. This could be the start of your transition and willingness to commit to a calmer more fulfilling life with your focus clear.